Our Research : Evaluating the Sensitivity and Responsiveness of the SCI-QOL CAT

SCI Quality of Life Computer Adaptive Test Study

Principal Investigator: Dr. Elizabeth Felix, Ph.D.. (Site PI)

This study is conducted in collaboration with multiple centers and is led by Dr. David Tulsky at the Univeristy of Michigan.

The SCI-QOL measurement system was developed over the last 5 years with funding from NIDRR and NIH to develop a multifaceted system of measuring patient reported outcomes across a wide variety of functioning specifically targeted for individuals with SCI. In order to fully utilize the SCI-QOL measurement system, additional data on the sensitivity and responsiveness to change of the item banks are needed. The data yielded by this proposed modular project would allow researchers greater confidence to include the SCI-QOL item banks in intervention research, to use in clinical settings, and even to include as potential variables within the SCIMS database. This module is a prospective, longitudinal study that will extend the SCI-QOL instrument development work completed during the past 5 years and evaluate the validity, sensitivity, and responsiveness to change of the SCI-QOL measurement system. In addition to examining the sensitivity of the scales to detect change, this module will examine the trajectory of change of key areas of functioning across a diverse set of functions including activity limitations, secondary medical complications, emotional functioning, and social participation.

Inclusion Criteria:

1. Presence of an external traumatic event that results in a spinal cord injury, including surgical procedures, radiation, and medical complications.
2. Temporary or permanent loss of sensory and/or motor function as a result of the traumatic event.
3. Admitted to the UM/Jackson system within one year of injury. If patient is discharged from the UM/Jackson system as minimal deficit or recovered, they must be hospitalized in the system for at least one week before discharge.
4. Must be speak and understand English
5. Must be 18 years of age or older


The enrollment period for this study has ended. If you have any questions regarding this study or would like to participate in future research, please contact Kate McManus: k.mcmanus1@umiami.edu or 305-243-3575